Psychosocial factors contributing to the burden of Informal caregivers of people living with alzheimer’s in Bogotá
This study examines psychosocial factors contributing to caregiver burden and decreased subjective well-being among informal caregivers of people living with Alzheimer’s disease in Bogotá, Colombia. The research aimed to identify which caregiver- and patient-related variables most significantly infl...
- Autores:
-
Fajardo Rivadeneira, Mariana
Cordovez Suárez, Eva
- Tipo de recurso:
- Trabajo de grado de pregrado
- Fecha de publicación:
- 2025
- Institución:
- Universidad de los Andes
- Repositorio:
- Séneca: repositorio Uniandes
- Idioma:
- eng
- OAI Identifier:
- oai:repositorio.uniandes.edu.co:1992/76344
- Acceso en línea:
- https://hdl.handle.net/1992/76344
- Palabra clave:
- Caregiver burden
Subjective well-being
Dementia
Alzheimer’s disease
Psychosocial factors
Patient-related variables
Informal caregiving
Socioeconomic status
Colombia
Psicología
- Rights
- openAccess
- License
- Attribution-NonCommercial-NoDerivatives 4.0 International
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Psychosocial factors contributing to the burden of Informal caregivers of people living with alzheimer’s in Bogotá |
| title |
Psychosocial factors contributing to the burden of Informal caregivers of people living with alzheimer’s in Bogotá |
| spellingShingle |
Psychosocial factors contributing to the burden of Informal caregivers of people living with alzheimer’s in Bogotá Caregiver burden Subjective well-being Dementia Alzheimer’s disease Psychosocial factors Patient-related variables Informal caregiving Socioeconomic status Colombia Psicología |
| title_short |
Psychosocial factors contributing to the burden of Informal caregivers of people living with alzheimer’s in Bogotá |
| title_full |
Psychosocial factors contributing to the burden of Informal caregivers of people living with alzheimer’s in Bogotá |
| title_fullStr |
Psychosocial factors contributing to the burden of Informal caregivers of people living with alzheimer’s in Bogotá |
| title_full_unstemmed |
Psychosocial factors contributing to the burden of Informal caregivers of people living with alzheimer’s in Bogotá |
| title_sort |
Psychosocial factors contributing to the burden of Informal caregivers of people living with alzheimer’s in Bogotá |
| dc.creator.fl_str_mv |
Fajardo Rivadeneira, Mariana Cordovez Suárez, Eva |
| dc.contributor.advisor.none.fl_str_mv |
Báez Buitrago, Sandra Jimena |
| dc.contributor.author.none.fl_str_mv |
Fajardo Rivadeneira, Mariana Cordovez Suárez, Eva |
| dc.contributor.jury.none.fl_str_mv |
Muñoz Martínez, Amanda Milena |
| dc.contributor.researchgroup.none.fl_str_mv |
Facultad de Ciencias Sociales::Cerebro y Cognición Social |
| dc.contributor.seedbeds.none.fl_str_mv |
Neurociencia Social |
| dc.subject.keyword.eng.fl_str_mv |
Caregiver burden Subjective well-being Dementia Alzheimer’s disease Psychosocial factors Patient-related variables Informal caregiving Socioeconomic status |
| topic |
Caregiver burden Subjective well-being Dementia Alzheimer’s disease Psychosocial factors Patient-related variables Informal caregiving Socioeconomic status Colombia Psicología |
| dc.subject.keyword.none.fl_str_mv |
Colombia |
| dc.subject.themes.spa.fl_str_mv |
Psicología |
| description |
This study examines psychosocial factors contributing to caregiver burden and decreased subjective well-being among informal caregivers of people living with Alzheimer’s disease in Bogotá, Colombia. The research aimed to identify which caregiver- and patient-related variables most significantly influence perceived burden and well-being. A total of 107 informal caregivers were recruited and categorized into three socioeconomic groups based on monthly income. Data were collected through validated instruments measuring caregiver burden, life satisfaction, psychological well-being, positive and negative affect, and psychosocial variables (e.g., anxiety, depression, loneliness, positive aspects of caregiving, mental and physical health). Patient characteristics were also assessed using measures such as the Barthel Index, Clinical Dementia Rating, and Neuropsychiatric Inventory. Results showed that 74.77% of participants experienced caregiver burden, with a higher burden reported in lower socioeconomic groups. Significant differences in burden, well-being, and negative affect were found between socioeconomic groups, highlighting inequality in caregiving experiences. Regression analyses revealed that caregiver burden was primarily predicted by psychosocial variables, notably being female and having higher anxiety levels. Life satisfaction was positively predicted by mental health and positive caregiving perceptions, and negatively by loneliness and cognitive functioning. Negative affect was predicted by female gender and anxiety, while positive affect was not significantly predicted by psychosocial factors. Psychological well-being was positively predicted by positive caregiving perceptions, socioeconomic status, education, and mental health, and negatively by loneliness, depression, and cognitive functioning. Among patient-related variables, only neuropsychiatric symptoms significantly predicted caregiver burden. Regarding positive affect, greater patient independence and higher dementia severity were associated with lower positive affect in caregivers, while more severe neuropsychiatric symptoms had a paradoxical positive association. No patient-related variables significantly predicted life satisfaction or psychological well-being. These findings emphasize the need for caregiver-centered interventions, especially in lower-income settings, that address anxiety, loneliness, gender disparities, and promote positive meaning in caregiving. |
| publishDate |
2025 |
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2025-06-19T15:37:50Z |
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2025-06-19T15:37:50Z |
| dc.date.issued.none.fl_str_mv |
2025-05 |
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Trabajo de grado - Pregrado |
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info:eu-repo/semantics/bachelorThesis |
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info:eu-repo/semantics/acceptedVersion |
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instname:Universidad de los Andes |
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reponame:Repositorio Institucional Séneca |
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eng |
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eng |
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Alonso, J., Prieto, L., & Antó, J. (1995). [The Spanish version of the SF-36 Health Survey (the SF-36 health questionnaire): an instrument for measuring clinical results]. National Library of Medicine, 104(20). Ameri, F., Rahmani, H., Mirhosseini, S., Basirinezhad, M. H., Saeedi, M., & Ebrahimi, H. (2024). Exploring Caregiver Burden in Alzheimer’s Disease: The Predictive Role Of Psychological Distress. The Open Public Health Journal, 17(1). https://doi.org/10.2174/0118749445327572240916091208 Arango, J., Panyavin, I., & Arabia, J. (2014). Evaluation of a Group Cognitive–Behavioral Dementia Caregiver Intervention in Latin America. American Journal of Alzheimer’s Disease & Other Dementias. Boada, M., Cejudo, J. C., Tarraga, L., López, L., & Kaufer, D. (2002). [Neuropsychiatric inventory questionnaire (NPI-Q): Spanish validation of an abridged form of the Neuropsychiatric Inventory (NPI)]. National Library of Medicine , 6. Brodaty, H., & Donkin, M. (2022). Familiares que cuidan a personas con demencia. Dialogues in Clinical Neurocience , 11(2), 217–228. Camacho, L., Gladys, Y., & Jimenez, A. (2010). Sobrecarga del cuidador primario de personas con deterioro cognitivo y su relación con el tiempo de cuidado. Enfermería Universitaria , 7(4), 35–41. Cano, C., Borda, M., Reyes, C., Arciniegas, A., & Samper, R. (2017). Assessment of factors associated with functional status in 60 years-old and older adults in Bogotá, Colombia. Biomédica , 37(1), 57–65. Casal Rodríguez, B., Rivera Castiñeira, B., & Currais Nunes, L. (2019). Enfermedad de Alzheimer y calidad de vida del cuidador informal. Revista Española de Geriatría y Gerontología, 54(2), 81–87. https://doi.org/10.1016/j.regg.2018.10.008 Cerquera, A., Dugarte, E., Tiga, D., Plata, L., Catellanos, L., & Álvarez, W. (2021). Factores que influyen en la sobrecarga de cuidadores informales de pacientes con Trastorno Neurocognitivo debido a enfermedad de Alzheimer. Revista Univerisdad Javeriana, 20. Cerquera Córdoba, A. M., & Galvis Aparicio, M. J. (2014). Efectos de cuidar personas con Alzheimer: un estudio sobre cuidadores formales e informales. Pensamiento Psicológico, 12(1). https://doi.org/10.11144/Javerianacali.PPSI12-1.ecpa Champions for Health. (2018). Montreal Cognitive Assessment [Evaluación Cognitiva Montreal] (MoCA) Versión 8.1. Chemisquy, S., Arévalo, L., & Sadaniowski, A. (2022). Evidencias de validez y confiabilidad de la versión abreviada de la Escala de Soledad de De Jong-Gierveld en estudiantes universitarios de Argentina. Propósitos Y Representaciones, 10(3). https://doi.org/10.20511/pyr2022.v10n3.1723 Cummings, J. L. (2009). Comprehensive Assessment of Psychopathology in Patients with Dementia. Custodio, N. (2017). Validación y precisión de la escala de deterioro global (GDS) para establecer severidad de demencia en una población de Lima. 31(1). Daust, R., Brewster, G., & Rowe, M. (2013). Depression in informal caregivers of persons with dementia. International Journal of Older People Nursing. Delhom, I., Guitierrez, M., Lucas Molina, B., & Meléndez, J. C. (2017). Emotional intelligence in older adults: psychometric properties of the TMMS-24 and relationship with psychological well-being and life satisfaction. National Library of Medicine , 8. Del-Pino-Casado, R., Priego-Cubero, E., López-Martínez, C., & Orgeta, V. (2021). Subjective caregiver burden and anxiety in informal caregivers: A systematic review and meta-analysis. PLOS ONE, 16(3), e0247143. https://doi.org/10.1371/journal.pone.0247143 Di Guinta, L., Uribe, L., & Ruiz, M. (2024). Cultural values, parenting and child adjustment in Colombia. Interantional Journal of Psychology. Díaz, D., Rodríguez-Carvajal, R., Blanco, A., Moreno-Jiménez, B., Gallardo, I., Valle, C., & Van Dierendonck, D. (2006). Adaptación española de las escalas de bienestar psicológico de Ryff. Psicothema, 18(3), 572–577. Diaz, S. (2022). Cifras de Kantar indicaron que la población estrato 1 en Colombia corresponde al 21%. La República. Fahmy, S. (2024). Study Highlights Financial Burden of Dementia on Older Adults, Families Study Highlights Financial Burden of Dementia on Older Adults, Families. Georgia State University . Faul, F., Erdfelder, E., Buchner, A., & Lang, A.-G. (2009). Statistical power analyses using G*Power 3.1: Tests for correlation and regression analyses. Behavior Research Methods, 41(4), 1149–1160. https://doi.org/10.3758/BRM.41.4.1149 Gallicchio, L., Siddiqi, N., Langenberg, P., & Baumgarten, M. (2002). Gender differences in burden and depression among informal caregivers of demented elders in the community. International Journal of Geriatric Psychiatry, 17(2), 154–163. https://doi.org/10.1002/gps.538 Gargurevich, R. (2010). Propiedades psicométricas de la versión internacional de la Escala de Afecto Positivo y Negativo-forma corta (I- Spanas SF) en estudiantes universitarios. Persona, 13(13). Gonzalez, A., Oliveira, M., Guiragossian, S., & Simkin, H. (2023). Evidencias de validez y confiabilidad de la escala de Trastorno de Ansiedad Generalizada (GAD-7). Revista de Ciencias Empresariales y Sociales, 8(5). Gonzalez, J., & Biino, M. (2024). Colombia census finds 1.6 million people lifted out of poverty in 2023, but extreme inequality persists. Hajek, A., & König, H. (2015). Informal Caregiving and Subjective Well-Being: Evidence of a Population-Based Longitudinal Study of Older Adults in Germany. Jamda. Las Hayas, C., López de Arroyabe, E., & Calvete, E. (2014). Positive aspects of caregiving in Spanish caregivers of individuals with acquired brain injury. National Library of Medicine , 59(2). López, M., Castro, S., & Rosas, O. (2016). Psychometric properties of the Satisfaction with Life Scale (SWLS): secondary analysis of the Mexican Health and Aging Study. National Library of Medicine , 14(1). Mahoney, F., & Barthel, D. (1965). FUNCTIONAL EVALUATION: THE BARTHEL INDEX. PubMed. Medrano, M., Rosario, R., Payano, A., & Capellán, N. (2014). Burden, anxiety and depression in caregivers of Alzheimer patients in the Dominican Republic. Dementia & neuropsychologia. 8. Monson, D. (2021). Life Satisfaction: Aging Female Informal Caregivers of Persons with Dementia. Portero, A., & Garcés, E. (1998). Burnout en cuidadores principales de pacientes con Alzheimer: el síndrome del asistente desasistido. Anales de Psicología, 14(1). Queluz, F. N. F. R., Kervin, E., Wozney, L., Fancey, P., McGrath, P. J., & Keefe, J. (2020). Understanding the needs of caregivers of persons with dementia: a scoping review. International Psychogeriatrics, 32(1), 35–52. https://doi.org/10.1017/S1041610219000243 Scopetta, O., & Cassiani, C. (2018). Factorial structure of the Patient Health Questionnaire-9 as a depression screening instrument for university students in Cartagena, Colombia. National Library of Medicine , 269(425–429). Sociedad Español de Neurología. (2007). Clinical Dementia Rating (CDR) de Hughes. Spitzer, R. L., Kroenke, K., Williams, J. B. W., & Löwe, B. (2006). A Brief Measure for Assessing Generalized Anxiety Disorder. Archives of Internal Medicine, 166(10), 1092. https://doi.org/10.1001/archinte.166.10.1092 Valdelamar, A., Parra, A. M., Sánchez, R., & De la Hoz, F. (2022). Adaptación transcultural de la versión colombiana de la Escala de Soledad de UCLA en pacientes con diagnóstico de cáncer. Revista Colombiana de Cancerología, 26(1). Vélez Lopera, J. M., Berbesí Fernández, D., Cardona Arango, D., Segura Cardona, A., & Ordóñez Molina, J. (2012). Validación de escalas abreviadas de zarit para la medición de síndrome del cuidador primario del adulto mayor en MedellínValidation of the abbreviated zarit scales for measuring burden syndrome in the primary caregiver of an elderly patient. Atención Primaria, 44(7), 411–416. Vera-Villaroel, P., Silva, J., Celis-Atenas, K., & Pavez, P. (2014). Evaluación del cuestionario SF- 12: verificación de la utilidad de la escala salud mental. Rev Med, 142, 1275–1283. Wang, S., Luo, Y., Shan, Q., Liu, M., Wang, P., Huang, C., & Him, Z. (2025). Unraveling the subjective well-being BMC Geriatrics Open Access of formal and informal caregivers for people with dementia: a comparative analysis. BMC Geraitrics. Watson, D., Clark, L. A., & Tellegen, A. (1988). Development and validation of brief measures of positive and negative affect: The PANAS scales. Journal of Personality and Social Psychology, 54(6), 1063–1070. World Health Organization. (2017). Dementia: number of people affected to triple in next 30 years. |
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Báez Buitrago, Sandra Jimenavirtual::24292-1Fajardo Rivadeneira, MarianaCordovez Suárez, EvaMuñoz Martínez, Amanda MilenaFacultad de Ciencias Sociales::Cerebro y Cognición SocialNeurociencia Social2025-06-19T15:37:50Z2025-06-19T15:37:50Z2025-05https://hdl.handle.net/1992/76344instname:Universidad de los Andesreponame:Repositorio Institucional Sénecarepourl:https://repositorio.uniandes.edu.co/This study examines psychosocial factors contributing to caregiver burden and decreased subjective well-being among informal caregivers of people living with Alzheimer’s disease in Bogotá, Colombia. The research aimed to identify which caregiver- and patient-related variables most significantly influence perceived burden and well-being. A total of 107 informal caregivers were recruited and categorized into three socioeconomic groups based on monthly income. Data were collected through validated instruments measuring caregiver burden, life satisfaction, psychological well-being, positive and negative affect, and psychosocial variables (e.g., anxiety, depression, loneliness, positive aspects of caregiving, mental and physical health). Patient characteristics were also assessed using measures such as the Barthel Index, Clinical Dementia Rating, and Neuropsychiatric Inventory. Results showed that 74.77% of participants experienced caregiver burden, with a higher burden reported in lower socioeconomic groups. Significant differences in burden, well-being, and negative affect were found between socioeconomic groups, highlighting inequality in caregiving experiences. Regression analyses revealed that caregiver burden was primarily predicted by psychosocial variables, notably being female and having higher anxiety levels. Life satisfaction was positively predicted by mental health and positive caregiving perceptions, and negatively by loneliness and cognitive functioning. Negative affect was predicted by female gender and anxiety, while positive affect was not significantly predicted by psychosocial factors. Psychological well-being was positively predicted by positive caregiving perceptions, socioeconomic status, education, and mental health, and negatively by loneliness, depression, and cognitive functioning. Among patient-related variables, only neuropsychiatric symptoms significantly predicted caregiver burden. Regarding positive affect, greater patient independence and higher dementia severity were associated with lower positive affect in caregivers, while more severe neuropsychiatric symptoms had a paradoxical positive association. No patient-related variables significantly predicted life satisfaction or psychological well-being. These findings emphasize the need for caregiver-centered interventions, especially in lower-income settings, that address anxiety, loneliness, gender disparities, and promote positive meaning in caregiving.Bolsa de Investigaciones de la Facultad de Ciencias SocialesPregrado44 páginasapplication/pdfengUniversidad de los AndesPsicologíaFacultad de Ciencias SocialesDepartamento de PsicologíaAttribution-NonCommercial-NoDerivatives 4.0 Internationalhttp://creativecommons.org/licenses/by-nc-nd/4.0/info:eu-repo/semantics/openAccesshttp://purl.org/coar/access_right/c_abf2Psychosocial factors contributing to the burden of Informal caregivers of people living with alzheimer’s in BogotáTrabajo de grado - Pregradoinfo:eu-repo/semantics/bachelorThesisinfo:eu-repo/semantics/acceptedVersionhttp://purl.org/coar/resource_type/c_7a1fTexthttp://purl.org/redcol/resource_type/TPCaregiver burdenSubjective well-beingDementiaAlzheimer’s diseasePsychosocial factorsPatient-related variablesInformal caregivingSocioeconomic statusColombiaPsicologíaAlonso, J., Prieto, L., & Antó, J. (1995). [The Spanish version of the SF-36 Health Survey (the SF-36 health questionnaire): an instrument for measuring clinical results]. National Library of Medicine, 104(20).Ameri, F., Rahmani, H., Mirhosseini, S., Basirinezhad, M. H., Saeedi, M., & Ebrahimi, H. (2024). Exploring Caregiver Burden in Alzheimer’s Disease: The Predictive Role Of Psychological Distress. The Open Public Health Journal, 17(1). https://doi.org/10.2174/0118749445327572240916091208Arango, J., Panyavin, I., & Arabia, J. (2014). Evaluation of a Group Cognitive–Behavioral Dementia Caregiver Intervention in Latin America. American Journal of Alzheimer’s Disease & Other Dementias.Boada, M., Cejudo, J. C., Tarraga, L., López, L., & Kaufer, D. (2002). [Neuropsychiatric inventory questionnaire (NPI-Q): Spanish validation of an abridged form of the Neuropsychiatric Inventory (NPI)]. National Library of Medicine , 6.Brodaty, H., & Donkin, M. (2022). Familiares que cuidan a personas con demencia. Dialogues in Clinical Neurocience , 11(2), 217–228.Camacho, L., Gladys, Y., & Jimenez, A. (2010). Sobrecarga del cuidador primario de personas con deterioro cognitivo y su relación con el tiempo de cuidado. Enfermería Universitaria , 7(4), 35–41.Cano, C., Borda, M., Reyes, C., Arciniegas, A., & Samper, R. (2017). Assessment of factors associated with functional status in 60 years-old and older adults in Bogotá, Colombia. Biomédica , 37(1), 57–65.Casal Rodríguez, B., Rivera Castiñeira, B., & Currais Nunes, L. (2019). Enfermedad de Alzheimer y calidad de vida del cuidador informal. Revista Española de Geriatría y Gerontología, 54(2), 81–87. https://doi.org/10.1016/j.regg.2018.10.008Cerquera, A., Dugarte, E., Tiga, D., Plata, L., Catellanos, L., & Álvarez, W. (2021). Factores que influyen en la sobrecarga de cuidadores informales de pacientes con Trastorno Neurocognitivo debido a enfermedad de Alzheimer. Revista Univerisdad Javeriana, 20.Cerquera Córdoba, A. M., & Galvis Aparicio, M. J. (2014). Efectos de cuidar personas con Alzheimer: un estudio sobre cuidadores formales e informales. Pensamiento Psicológico, 12(1). https://doi.org/10.11144/Javerianacali.PPSI12-1.ecpaChampions for Health. (2018). Montreal Cognitive Assessment [Evaluación Cognitiva Montreal] (MoCA) Versión 8.1.Chemisquy, S., Arévalo, L., & Sadaniowski, A. (2022). Evidencias de validez y confiabilidad de la versión abreviada de la Escala de Soledad de De Jong-Gierveld en estudiantes universitarios de Argentina. Propósitos Y Representaciones, 10(3). https://doi.org/10.20511/pyr2022.v10n3.1723Cummings, J. L. (2009). Comprehensive Assessment of Psychopathology in Patients with Dementia.Custodio, N. (2017). Validación y precisión de la escala de deterioro global (GDS) para establecer severidad de demencia en una población de Lima. 31(1).Daust, R., Brewster, G., & Rowe, M. (2013). Depression in informal caregivers of persons with dementia. International Journal of Older People Nursing.Delhom, I., Guitierrez, M., Lucas Molina, B., & Meléndez, J. C. (2017). Emotional intelligence in older adults: psychometric properties of the TMMS-24 and relationship with psychological well-being and life satisfaction. National Library of Medicine , 8.Del-Pino-Casado, R., Priego-Cubero, E., López-Martínez, C., & Orgeta, V. (2021). Subjective caregiver burden and anxiety in informal caregivers: A systematic review and meta-analysis. PLOS ONE, 16(3), e0247143. https://doi.org/10.1371/journal.pone.0247143Di Guinta, L., Uribe, L., & Ruiz, M. (2024). Cultural values, parenting and child adjustment in Colombia. Interantional Journal of Psychology.Díaz, D., Rodríguez-Carvajal, R., Blanco, A., Moreno-Jiménez, B., Gallardo, I., Valle, C., & Van Dierendonck, D. (2006). Adaptación española de las escalas de bienestar psicológico de Ryff. Psicothema, 18(3), 572–577.Diaz, S. (2022). 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