Experiencias de las conductas autoestimulatorias o stimming en personas con síndrome de Gilles de la Tourette: Un estudio de casos

Este estudio cualitativo, desarrollado mediante un diseño de casos múltiples con enfoque fenomenológico, tuvo como objetivo comprender la experiencia de las conductas autoestimulatorias (stimming) en personas diagnosticadas con el síndrome de Gilles de la Tourette (ST). A partir de entrevistas en pr...

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Autores:
Velasco Rodríguez, Joan Estiven
Tipo de recurso:
Trabajo de grado de pregrado
Fecha de publicación:
2025
Institución:
Universidad Autónoma de Bucaramanga - UNAB
Repositorio:
Repositorio UNAB
Idioma:
spa
OAI Identifier:
oai:repository.unab.edu.co:20.500.12749/29475
Acceso en línea:
http://hdl.handle.net/20.500.12749/29475
Palabra clave:
Psychology
Tourette Syndrome
sensory self-regulation
Stimming
Stereotypies
Tics
Self-stimulation
Stigma
Mental health
Impulse control disorders
Nervous system (Diseases)
Movement disorders
Psicología
Salud mental
Trastornos del control de impulsos
Sistema nervioso (Enfermedades)
Trastornos del movimiento
Conductas autoestimulatorias
Estereotipias
Autorregulación sensorial
Tics
Autoestimulación
Estigma
Síndrome de gilles de la Tourette
Rights
License
http://creativecommons.org/licenses/by-nc-nd/2.5/co/
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dc.title.spa.fl_str_mv Experiencias de las conductas autoestimulatorias o stimming en personas con síndrome de Gilles de la Tourette: Un estudio de casos
dc.title.translated.spa.fl_str_mv Experiences of Self-Stimulatory Behaviors or Stimming in Individuals with Gilles de la Tourette Syndrome: A Case Study
title Experiencias de las conductas autoestimulatorias o stimming en personas con síndrome de Gilles de la Tourette: Un estudio de casos
spellingShingle Experiencias de las conductas autoestimulatorias o stimming en personas con síndrome de Gilles de la Tourette: Un estudio de casos
Psychology
Tourette Syndrome
sensory self-regulation
Stimming
Stereotypies
Tics
Self-stimulation
Stigma
Mental health
Impulse control disorders
Nervous system (Diseases)
Movement disorders
Psicología
Salud mental
Trastornos del control de impulsos
Sistema nervioso (Enfermedades)
Trastornos del movimiento
Conductas autoestimulatorias
Estereotipias
Autorregulación sensorial
Tics
Autoestimulación
Estigma
Síndrome de gilles de la Tourette
title_short Experiencias de las conductas autoestimulatorias o stimming en personas con síndrome de Gilles de la Tourette: Un estudio de casos
title_full Experiencias de las conductas autoestimulatorias o stimming en personas con síndrome de Gilles de la Tourette: Un estudio de casos
title_fullStr Experiencias de las conductas autoestimulatorias o stimming en personas con síndrome de Gilles de la Tourette: Un estudio de casos
title_full_unstemmed Experiencias de las conductas autoestimulatorias o stimming en personas con síndrome de Gilles de la Tourette: Un estudio de casos
title_sort Experiencias de las conductas autoestimulatorias o stimming en personas con síndrome de Gilles de la Tourette: Un estudio de casos
dc.creator.fl_str_mv Velasco Rodríguez, Joan Estiven
dc.contributor.advisor.none.fl_str_mv Parra Villa, Yamilena
dc.contributor.author.none.fl_str_mv Velasco Rodríguez, Joan Estiven
dc.contributor.cvlac.spa.fl_str_mv Parra Villa, Yamilena [0001203495]
dc.contributor.googlescholar.spa.fl_str_mv Parra Villa, Yamilena [es&oi=ao]
dc.contributor.orcid.spa.fl_str_mv Parra Villa, Yamilena [0000-0001-7223-2466]
dc.contributor.apolounab.spa.fl_str_mv Parra Villa, Yamilena [yamilena-parra-villa-2]
dc.subject.keywords.spa.fl_str_mv Psychology
Tourette Syndrome
sensory self-regulation
Stimming
Stereotypies
Tics
Self-stimulation
Stigma
Mental health
Impulse control disorders
Nervous system (Diseases)
Movement disorders
topic Psychology
Tourette Syndrome
sensory self-regulation
Stimming
Stereotypies
Tics
Self-stimulation
Stigma
Mental health
Impulse control disorders
Nervous system (Diseases)
Movement disorders
Psicología
Salud mental
Trastornos del control de impulsos
Sistema nervioso (Enfermedades)
Trastornos del movimiento
Conductas autoestimulatorias
Estereotipias
Autorregulación sensorial
Tics
Autoestimulación
Estigma
Síndrome de gilles de la Tourette
dc.subject.lemb.spa.fl_str_mv Psicología
Salud mental
Trastornos del control de impulsos
Sistema nervioso (Enfermedades)
Trastornos del movimiento
dc.subject.proposal.spa.fl_str_mv Conductas autoestimulatorias
Estereotipias
Autorregulación sensorial
Tics
Autoestimulación
Estigma
Síndrome de gilles de la Tourette
description Este estudio cualitativo, desarrollado mediante un diseño de casos múltiples con enfoque fenomenológico, tuvo como objetivo comprender la experiencia de las conductas autoestimulatorias (stimming) en personas diagnosticadas con el síndrome de Gilles de la Tourette (ST). A partir de entrevistas en profundidad realizadas a tres participantes con diagnóstico confirmado, se exploraron aspectos conductuales, funcionales, contextuales y emocionales de estas conductas, diferenciándolas de los tics asociados al ST. Los resultados evidencian que el stimming cumple funciones relevantes de autorregulación sensorial y emocional, y que su manifestación está influida por factores contextuales y comórbidos, como la ansiedad o el trastorno obsesivo-compulsivo (TOC). Asimismo, se identificaron diversas estrategias de afrontamiento y un impacto significativo tanto en la dimensión emocional como en la social de los participantes. La investigación subraya la necesidad de despatologizar estas conductas y de adoptar una perspectiva comprensiva y funcional sobre la experiencia vivida por las personas con ST.
publishDate 2025
dc.date.accessioned.none.fl_str_mv 2025-06-06T19:24:03Z
dc.date.available.none.fl_str_mv 2025-06-06T19:24:03Z
dc.date.issued.none.fl_str_mv 2025-05-29
dc.type.driver.none.fl_str_mv info:eu-repo/semantics/bachelorThesis
dc.type.local.spa.fl_str_mv Trabajo de Grado
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spelling Parra Villa, Yamilena3fb98eda-1e7b-45d1-9916-76aaeb30adffVelasco Rodríguez, Joan Estivene67c3ab2-edf1-48ca-ace9-4ea29675ea8aParra Villa, Yamilena [0001203495]Parra Villa, Yamilena [es&oi=ao]Parra Villa, Yamilena [0000-0001-7223-2466]Parra Villa, Yamilena [yamilena-parra-villa-2]Bucaramanga (Santander, Colombia)2024-2025UNAB Campus Bucaramanga2025-06-06T19:24:03Z2025-06-06T19:24:03Z2025-05-29http://hdl.handle.net/20.500.12749/29475instname:Universidad Autónoma de Bucaramanga - UNABreponame:Repositorio Institucional UNABrepourl:https://repository.unab.edu.coEste estudio cualitativo, desarrollado mediante un diseño de casos múltiples con enfoque fenomenológico, tuvo como objetivo comprender la experiencia de las conductas autoestimulatorias (stimming) en personas diagnosticadas con el síndrome de Gilles de la Tourette (ST). A partir de entrevistas en profundidad realizadas a tres participantes con diagnóstico confirmado, se exploraron aspectos conductuales, funcionales, contextuales y emocionales de estas conductas, diferenciándolas de los tics asociados al ST. Los resultados evidencian que el stimming cumple funciones relevantes de autorregulación sensorial y emocional, y que su manifestación está influida por factores contextuales y comórbidos, como la ansiedad o el trastorno obsesivo-compulsivo (TOC). Asimismo, se identificaron diversas estrategias de afrontamiento y un impacto significativo tanto en la dimensión emocional como en la social de los participantes. La investigación subraya la necesidad de despatologizar estas conductas y de adoptar una perspectiva comprensiva y funcional sobre la experiencia vivida por las personas con ST.Introducción ................................................................................................................................... 10 Planteamiento del Problema y su Justificación .............................................................................. 11 Objetivos ........................................................................................................................................ 17 Objetivo General ................................................................................................................ 17 Objetivos Específicos ......................................................................................................... 17 Antecedentes .................................................................................................................................. 17 Marco Teórico ................................................................................................................................ 24 Síndrome de Gilles de la Tourette ...................................................................................... 24 Tics ......................................................................................................................... 26 Estereotipias ....................................................................................................................... 28 Diferencias entre tics y movimientos estereotipados ............................................. 29 Clasificación de Comportamientos Estereotípicos según Contingencias de Refuerzo .................................................................................................................. 30 Conductas Autoestimulatorias ............................................................................................ 31 Metodología ................................................................................................................................... 33 Tipo de Investigación ......................................................................................................... 33 Diseño de Investigación ..................................................................................................... 34 Participantes ....................................................................................................................... 38 Criterios de Inclusión .............................................................................................. 39 Criterios de Exclusión ............................................................................................ 39 Procedimiento ..................................................................................................................... 40 Reclutamiento de Participantes .............................................................................. 40 Consentimiento Informado y Asentimiento Informado .......................................... 40 Instrumentos de Recolección de Datos ................................................................... 41 Almacenamiento y Organización de Datos ............................................................ 46 Análisis de los Datos .............................................................................................. 46 Resultados ...................................................................................................................................... 48 Unidad de Análisis: Conducta y Variabilidad .................................................................... 50 Categoría: Topografía ............................................................................................. 51 Categoría: Función ................................................................................................. 58 Categoría: Contexto ................................................................................................ 61 Unidad de análisis: Experiencia subjetiva .......................................................................... 65 Categoría: Comorbilidades Diagnosticadas ............................................................ 65 Categoría: Estrategias de Afrontamiento ................................................................ 67 Categoría: Pensamientos relacionados al Stimming ............................................... 72 Unidad de análisis: Impacto ............................................................................................... 79 Categoría: Impacto Emocional ............................................................................... 79 Categoría: Impacto Social ...................................................................................... 85 Discusión ........................................................................................................................................ 89 Conclusiones ................................................................................................................................ 101 Recomendaciones ......................................................................................................................... 103 Referencias ................................................................................................................................... 104 Anexos .......................................................................................................................................... 113 Anexo A. Consentimiento Informado Para Investigación ................................................ 113 Anexo B. Preguntas Guía para la Entrevista .................................................................... 116 Anexo C. Continuación Tabla de Dimensiones de la Conducta ...................................... 118 Anexo D. Continuación Tabla de Funciones .................................................................... 122 Anexo E. Continuación Tabla de Contextos .................................................................... 124PregradoThis qualitative study, conducted using a multiple case design with a phenomenological approach, aimed to understand the experience of self-stimulatory behaviors (stimming) in individuals diagnosed with Gilles de la Tourette Syndrome (TS). Through in-depth interviews with three participants with confirmed diagnoses, the research explored behavioral, functional, contextual, and emotional aspects of these behaviors, distinguishing them from the tics typically associated with TS. Findings indicate that stimming serves important sensory and emotional self regulatory functions, and its expression is influenced by contextual factors and comorbid conditions such as anxiety and obsessive-compulsive disorder (OCD). Additionally, various coping strategies were identified, along with a significant impact on the emotional and social dimensions of participants' lives. The study highlights the importance of de-pathologizing these behaviors and adopting a functional and empathetic perspective on the lived experience of individuals with TS.Modalidad Presencialapplication/pdfspahttp://creativecommons.org/licenses/by-nc-nd/2.5/co/Abierto (Texto Completo)Atribución-NoComercial-SinDerivadas 2.5 Colombiahttp://purl.org/coar/access_right/c_abf2Experiencias de las conductas autoestimulatorias o stimming en personas con síndrome de Gilles de la Tourette: Un estudio de casosExperiences of Self-Stimulatory Behaviors or Stimming in Individuals with Gilles de la Tourette Syndrome: A Case StudyPsicólogoUniversidad Autónoma de Bucaramanga UNABFacultad Ciencias de la SaludPregrado PsicologíaPSI-265info:eu-repo/semantics/bachelorThesisTrabajo de Gradohttp://purl.org/coar/resource_type/c_7a1finfo:eu-repo/semantics/acceptedVersionhttp://purl.org/redcol/resource_type/TPPsychologyTourette Syndromesensory self-regulationStimmingStereotypiesTicsSelf-stimulationStigmaMental healthImpulse control disordersNervous system (Diseases)Movement disordersPsicologíaSalud mentalTrastornos del control de impulsosSistema nervioso (Enfermedades)Trastornos del movimientoConductas autoestimulatoriasEstereotipiasAutorregulación sensorialTicsAutoestimulaciónEstigmaSíndrome de gilles de la TouretteAhearn, W. 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UU.: Guilford Press.https://apolo.unab.edu.co/en/persons/yamilena-parra-villa-2ORIGINALEstudio de Casos sobre Conductas Autoestimulatorias en Personas con Síndrome de Tourette (2025).pdfEstudio de Casos sobre Conductas Autoestimulatorias en Personas con Síndrome de Tourette (2025).pdfTesisapplication/pdf929845https://repository.unab.edu.co/bitstream/20.500.12749/29475/1/Estudio%20de%20Casos%20sobre%20Conductas%20Autoestimulatorias%20en%20Personas%20con%20S%c3%adndrome%20de%20Tourette%20%282025%29.pdf10e3d114d99a5fdaff2ae91c108e5816MD51open accessFormato de autorización de uso por Estiven.pdfFormato de autorización de uso por Estiven.pdfLicenciaapplication/pdf155265https://repository.unab.edu.co/bitstream/20.500.12749/29475/2/Formato%20de%20autorizaci%c3%b3n%20de%20uso%20por%20Estiven.pdf9b57a8e89f1d5ea208a6f7372e0a976fMD52metadata only accessLICENSElicense.txtlicense.txttext/plain; charset=utf-8829https://repository.unab.edu.co/bitstream/20.500.12749/29475/3/license.txt3755c0cfdb77e29f2b9125d7a45dd316MD53open accessTHUMBNAILEstudio de Casos sobre Conductas Autoestimulatorias en Personas con Síndrome de Tourette (2025).pdf.jpgEstudio de Casos sobre Conductas Autoestimulatorias en Personas con Síndrome de Tourette (2025).pdf.jpgIM Thumbnailimage/jpeg5140https://repository.unab.edu.co/bitstream/20.500.12749/29475/4/Estudio%20de%20Casos%20sobre%20Conductas%20Autoestimulatorias%20en%20Personas%20con%20S%c3%adndrome%20de%20Tourette%20%282025%29.pdf.jpg3139ac6599c5ef571440c40b214b0b48MD54open accessFormato de autorización de uso por Estiven.pdf.jpgFormato de autorización de uso por Estiven.pdf.jpgIM Thumbnailimage/jpeg13289https://repository.unab.edu.co/bitstream/20.500.12749/29475/5/Formato%20de%20autorizaci%c3%b3n%20de%20uso%20por%20Estiven.pdf.jpg2e5128273499aaf1e7038fe31924a50dMD55metadata only access20.500.12749/29475oai:repository.unab.edu.co:20.500.12749/294752025-06-06 22:01:36.409open accessRepositorio Institucional | Universidad Autónoma de Bucaramanga - UNABrepositorio@unab.edu.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