Uncertainty towards the disease of family caregivers of patients in palliative care : a scoping review

ABSTRACT: Objective: To know the development of the scientific evidence on the uncertainty towards the disease of family caregivers of patients in palliative care. Materials and methods: A descriptive scoping review. A search was conducted in the Embase, ScienceDirect, Medline, Academic Search Compl...

Full description

Autores:
Arias Rojas, Edier Mauricio
Carreño Moreno, Sonia Patricia
Rojas Reyes, Jennifer
Tipo de recurso:
Review article
Fecha de publicación:
2020
Institución:
Universidad de Antioquia
Repositorio:
Repositorio UdeA
Idioma:
eng
OAI Identifier:
oai:bibliotecadigital.udea.edu.co:10495/21355
Acceso en línea:
http://hdl.handle.net/10495/21355
Palabra clave:
Incertidumbre
Uncertainty
Enfermería
Nursing
Cuidadores
Caregivers
Cuidados Paliativos
Palliative Care
Cuidados Paliativos al Final de la Vida
Hospice Care
Rights
openAccess
License
https://creativecommons.org/licenses/by-nc-nd/4.0/
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dc.title.spa.fl_str_mv Uncertainty towards the disease of family caregivers of patients in palliative care : a scoping review
dc.title.translated.spa.fl_str_mv Incertidumbre ante la enfermedad de cuidadores familiares de pacientes en cuidados paliativos : scoping review
Incerteza dos familiares e cuidadores perante a doença de pacientes em cuidados paliativos : scoping review
title Uncertainty towards the disease of family caregivers of patients in palliative care : a scoping review
spellingShingle Uncertainty towards the disease of family caregivers of patients in palliative care : a scoping review
Incertidumbre
Uncertainty
Enfermería
Nursing
Cuidadores
Caregivers
Cuidados Paliativos
Palliative Care
Cuidados Paliativos al Final de la Vida
Hospice Care
title_short Uncertainty towards the disease of family caregivers of patients in palliative care : a scoping review
title_full Uncertainty towards the disease of family caregivers of patients in palliative care : a scoping review
title_fullStr Uncertainty towards the disease of family caregivers of patients in palliative care : a scoping review
title_full_unstemmed Uncertainty towards the disease of family caregivers of patients in palliative care : a scoping review
title_sort Uncertainty towards the disease of family caregivers of patients in palliative care : a scoping review
dc.creator.fl_str_mv Arias Rojas, Edier Mauricio
Carreño Moreno, Sonia Patricia
Rojas Reyes, Jennifer
dc.contributor.author.none.fl_str_mv Arias Rojas, Edier Mauricio
Carreño Moreno, Sonia Patricia
Rojas Reyes, Jennifer
dc.contributor.researchgroup.spa.fl_str_mv Grupo de Investigación la Práctica de Enfermería en el Contexto Social
dc.subject.decs.none.fl_str_mv Incertidumbre
Uncertainty
Enfermería
Nursing
Cuidadores
Caregivers
Cuidados Paliativos
Palliative Care
Cuidados Paliativos al Final de la Vida
Hospice Care
topic Incertidumbre
Uncertainty
Enfermería
Nursing
Cuidadores
Caregivers
Cuidados Paliativos
Palliative Care
Cuidados Paliativos al Final de la Vida
Hospice Care
description ABSTRACT: Objective: To know the development of the scientific evidence on the uncertainty towards the disease of family caregivers of patients in palliative care. Materials and methods: A descriptive scoping review. A search was conducted in the Embase, ScienceDirect, Medline, Academic Search Complete, Scopus databases, during the 2000-2019 period. The following MeSH terms were used: uncertainty, palliative care, end of life, nursing and caregiver. Fifty articles were selected after the criticism process. Results: Five thematic nuclei emerged: characterization of uncertainty in the caregiver, factors influencing uncertainty, resources to manage uncertainty, uncertainty assessment, and therapies and interventions to approach uncertainty. The higher scale of evidence is found in the characterization of uncertainty in the caregiver, and the voids direct the development of Nursing interventions on the uncertainty of the caregivers of individuals in palliative care. Conclusions: Although the factors influencing uncertainty towards the disease of the caregiver are widely explored, the evidence on the interventions that may help to reduce uncertainty towards the disease is still limited.
publishDate 2020
dc.date.issued.none.fl_str_mv 2020
dc.date.accessioned.none.fl_str_mv 2021-07-31T20:04:25Z
dc.date.available.none.fl_str_mv 2021-07-31T20:04:25Z
dc.type.spa.fl_str_mv Artículo de revisión
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dc.identifier.citation.spa.fl_str_mv Arias-Rojas M, Carreño-Moreno S, Rojas-Reyes J. Uncertainty towards the disease of family caregivers of patients in palliative care: a scoping review. Aquichan [Internet]. 7 de septiembre de 2020; 20(3):e2034. Disponible en: https://aquichan.unisabana.edu.co/index.php/aquichan/article/view/13277
dc.identifier.issn.none.fl_str_mv 1657-5997
dc.identifier.uri.none.fl_str_mv http://hdl.handle.net/10495/21355
dc.identifier.doi.none.fl_str_mv 10.5294/aqui.2020.20.3.4
dc.identifier.eissn.none.fl_str_mv 2027-5374
identifier_str_mv Arias-Rojas M, Carreño-Moreno S, Rojas-Reyes J. Uncertainty towards the disease of family caregivers of patients in palliative care: a scoping review. Aquichan [Internet]. 7 de septiembre de 2020; 20(3):e2034. Disponible en: https://aquichan.unisabana.edu.co/index.php/aquichan/article/view/13277
1657-5997
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url http://hdl.handle.net/10495/21355
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dc.publisher.spa.fl_str_mv Universidad de la Sabana, Facultad de Enfermería y Rehabilitación
dc.publisher.place.spa.fl_str_mv Chía, Colombia
institution Universidad de Antioquia
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spelling Arias Rojas, Edier MauricioCarreño Moreno, Sonia PatriciaRojas Reyes, JenniferGrupo de Investigación la Práctica de Enfermería en el Contexto Social2021-07-31T20:04:25Z2021-07-31T20:04:25Z2020Arias-Rojas M, Carreño-Moreno S, Rojas-Reyes J. Uncertainty towards the disease of family caregivers of patients in palliative care: a scoping review. Aquichan [Internet]. 7 de septiembre de 2020; 20(3):e2034. Disponible en: https://aquichan.unisabana.edu.co/index.php/aquichan/article/view/132771657-5997http://hdl.handle.net/10495/2135510.5294/aqui.2020.20.3.42027-5374ABSTRACT: Objective: To know the development of the scientific evidence on the uncertainty towards the disease of family caregivers of patients in palliative care. Materials and methods: A descriptive scoping review. A search was conducted in the Embase, ScienceDirect, Medline, Academic Search Complete, Scopus databases, during the 2000-2019 period. The following MeSH terms were used: uncertainty, palliative care, end of life, nursing and caregiver. Fifty articles were selected after the criticism process. Results: Five thematic nuclei emerged: characterization of uncertainty in the caregiver, factors influencing uncertainty, resources to manage uncertainty, uncertainty assessment, and therapies and interventions to approach uncertainty. The higher scale of evidence is found in the characterization of uncertainty in the caregiver, and the voids direct the development of Nursing interventions on the uncertainty of the caregivers of individuals in palliative care. Conclusions: Although the factors influencing uncertainty towards the disease of the caregiver are widely explored, the evidence on the interventions that may help to reduce uncertainty towards the disease is still limited.RESUMEN: Objetivo: conocer el desarrollo de la evidencia científica sobre la incertidumbre ante la enfermedad de cuidadores familiares de pacientes en cuidados paliativos. Materiales y métodos: revisión descriptiva tipo scoping review. Se realizó una búsqueda en las bases de datos Embase, ScienceDirect, Medline, Academic Search Complete y Scopus, en el periodo 2000-2019. Se usaron los términos MeSH uncertainty, paliative care, end of life, nursing y caregiver. Luego del proceso de crítica, se seleccionaron cincuenta artículos. Resultados: emergieron cinco núcleos temáticos: caracterización de la incertidumbre en el cuidador, factores influyentes en la incertidumbre, recursos para el manejo de la incertidumbre, evaluación de la incertidumbre y terapéuticas e intervenciones para abordar la incertidumbre. La mayor escala de evidencia se encuentra en la caracterización de la incertidumbre en el cuidador, y los vacíos orientan el desarrollo de intervenciones de enfermería sobre la incertidumbre de los cuidadores de personas en cuidado paliativo. Conclusiones: si bien existe una amplia exploración de los factores que influyen en la incertidumbre ante la enfermedad del cuidador, la evidencia sobre las intervenciones que ayuden a disminuir la incertidumbre ante la enfermedad es aún escasa.COL014682213application/pdfengUniversidad de la Sabana, Facultad de Enfermería y RehabilitaciónChía, Colombiahttps://creativecommons.org/licenses/by-nc-nd/4.0/http://creativecommons.org/licenses/by-nc-nd/2.5/co/info:eu-repo/semantics/openAccesshttp://purl.org/coar/access_right/c_abf2Uncertainty towards the disease of family caregivers of patients in palliative care : a scoping reviewIncertidumbre ante la enfermedad de cuidadores familiares de pacientes en cuidados paliativos : scoping reviewIncerteza dos familiares e cuidadores perante a doença de pacientes em cuidados paliativos : scoping reviewArtículo de revisiónhttp://purl.org/coar/resource_type/c_dcae04bchttp://purl.org/coar/resource_type/c_2df8fbb1https://purl.org/redcol/resource_type/ARTREVhttp://purl.org/coar/version/c_970fb48d4fbd8a85info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionIncertidumbreUncertaintyEnfermeríaNursingCuidadoresCaregiversCuidados PaliativosPalliative CareCuidados Paliativos al Final de la VidaHospice CareAquichan.133120AquichanPublicationORIGINALAriasEdier_2020_UncertaintyPalliativeCare.pdfAriasEdier_2020_UncertaintyPalliativeCare.pdfArtículo de revisiónapplication/pdf401732https://bibliotecadigital.udea.edu.co/bitstreams/85453bb6-84dc-47ce-9747-abcadf99c460/download34f0f8933b56dc558aa396cad6b1dcfbMD51trueAnonymousREADCC-LICENSElicense_rdflicense_rdfapplication/rdf+xml; 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