Reconocimiento del niño con síndrome de Down como un sujeto de crianza
ABSTRACT: o describe how the children with Down`s syndrome are recognized by mothers as subjects of parenting and accompaniment. Methodology: an ethnographic study whose participants were 20 mothers of children with Down’s syndrome. Data were collected using semi-structured interviews and field obse...
- Autores:
-
Bastidas Acevedo, Miriam
Ariza Marriaga, Gustavo Alfredo
Zuliani Arango, Liliana Adela
- Tipo de recurso:
- Article of investigation
- Fecha de publicación:
- 2013
- Institución:
- Universidad de Antioquia
- Repositorio:
- Repositorio UdeA
- Idioma:
- spa
- OAI Identifier:
- oai:bibliotecadigital.udea.edu.co:10495/5086
- Acceso en línea:
- http://hdl.handle.net/10495/5086
- Palabra clave:
- Sindrome de Down
Crianza de niños
Discapacidad
- Rights
- openAccess
- License
- https://creativecommons.org/licenses/by-nc-sa/2.5/co/
| id |
UDEA2_0c3f772d555abfec57d2a3d3f64143db |
|---|---|
| oai_identifier_str |
oai:bibliotecadigital.udea.edu.co:10495/5086 |
| network_acronym_str |
UDEA2 |
| network_name_str |
Repositorio UdeA |
| repository_id_str |
|
| dc.title.spa.fl_str_mv |
Reconocimiento del niño con síndrome de Down como un sujeto de crianza |
| dc.title.translated.spa.fl_str_mv |
Recognizing a child with Down’s syndrome as a subject of parenting |
| title |
Reconocimiento del niño con síndrome de Down como un sujeto de crianza |
| spellingShingle |
Reconocimiento del niño con síndrome de Down como un sujeto de crianza Sindrome de Down Crianza de niños Discapacidad |
| title_short |
Reconocimiento del niño con síndrome de Down como un sujeto de crianza |
| title_full |
Reconocimiento del niño con síndrome de Down como un sujeto de crianza |
| title_fullStr |
Reconocimiento del niño con síndrome de Down como un sujeto de crianza |
| title_full_unstemmed |
Reconocimiento del niño con síndrome de Down como un sujeto de crianza |
| title_sort |
Reconocimiento del niño con síndrome de Down como un sujeto de crianza |
| dc.creator.fl_str_mv |
Bastidas Acevedo, Miriam Ariza Marriaga, Gustavo Alfredo Zuliani Arango, Liliana Adela |
| dc.contributor.author.none.fl_str_mv |
Bastidas Acevedo, Miriam Ariza Marriaga, Gustavo Alfredo Zuliani Arango, Liliana Adela |
| dc.contributor.researchgroup.spa.fl_str_mv |
Salud y Sociedad |
| dc.subject.none.fl_str_mv |
Sindrome de Down Crianza de niños Discapacidad |
| topic |
Sindrome de Down Crianza de niños Discapacidad |
| description |
ABSTRACT: o describe how the children with Down`s syndrome are recognized by mothers as subjects of parenting and accompaniment. Methodology: an ethnographic study whose participants were 20 mothers of children with Down’s syndrome. Data were collected using semi-structured interviews and field observations. Similarly, this study included a categorical analysis and a literature review. Results: given the cultural and social conceptions regarding this condition, mothers experience sadness and anxiety upon giving birth to a child with Down’s syndrome. Despite this, and thanks to coexistence and to the mother-child bond, the child is later perceived as a subject of parenting who is equal to another person without the syndrome. Discussion: children become social subjects when they achieve their goals in growth and development, and mothers can perceive this. Conclusion: by living with their sons, the mothers participating in this study discovered that their sons emerge as social persons with Down’s syndrome. The mothers also discovered that these individuals have their own potential and that it is possible to accompany them through parenting and therefore to realize themselves as mothers. |
| publishDate |
2013 |
| dc.date.issued.none.fl_str_mv |
2013 |
| dc.date.accessioned.none.fl_str_mv |
2016-10-27T15:12:55Z |
| dc.date.available.none.fl_str_mv |
2016-10-27T15:12:55Z |
| dc.type.spa.fl_str_mv |
Artículo de investigación |
| dc.type.coar.spa.fl_str_mv |
http://purl.org/coar/resource_type/c_2df8fbb1 |
| dc.type.redcol.spa.fl_str_mv |
https://purl.org/redcol/resource_type/ART |
| dc.type.coarversion.spa.fl_str_mv |
http://purl.org/coar/version/c_970fb48d4fbd8a85 |
| dc.type.driver.spa.fl_str_mv |
info:eu-repo/semantics/article |
| dc.type.version.spa.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
| format |
http://purl.org/coar/resource_type/c_2df8fbb1 |
| status_str |
publishedVersion |
| dc.identifier.citation.spa.fl_str_mv |
Bastidas M, Ariza G, Zuliani L. Reconocimiento del niño con síndrome de Down como un sujeto de crianza. Rev. Fac. Nac. Salud Pública 2013; 31(1): 102-109. |
| dc.identifier.issn.none.fl_str_mv |
0120-386X |
| dc.identifier.uri.none.fl_str_mv |
http://hdl.handle.net/10495/5086 |
| dc.identifier.eissn.none.fl_str_mv |
2256-3334 |
| identifier_str_mv |
Bastidas M, Ariza G, Zuliani L. Reconocimiento del niño con síndrome de Down como un sujeto de crianza. Rev. Fac. Nac. Salud Pública 2013; 31(1): 102-109. 0120-386X 2256-3334 |
| url |
http://hdl.handle.net/10495/5086 |
| dc.language.iso.spa.fl_str_mv |
spa |
| language |
spa |
| dc.relation.ispartofjournalabbrev.spa.fl_str_mv |
Rev. Fac. Nac. Salud Pública |
| dc.relation.citationendpage.spa.fl_str_mv |
217 |
| dc.relation.citationissue.spa.fl_str_mv |
1 |
| dc.relation.citationstartpage.spa.fl_str_mv |
211 |
| dc.relation.citationvolume.spa.fl_str_mv |
31 |
| dc.relation.ispartofjournal.spa.fl_str_mv |
Revista Facultad Nacional de Salud Pública |
| dc.rights.uri.*.fl_str_mv |
https://creativecommons.org/licenses/by-nc-sa/2.5/co/ |
| dc.rights.uri.spa.fl_str_mv |
https://creativecommons.org/licenses/by-nc-sa/4.0/ |
| dc.rights.accessrights.*.fl_str_mv |
Atribución-NoComercial-CompartirIgual 2.5 Colombia (CC BY-NC-SA 2.5 CO) |
| dc.rights.accessrights.spa.fl_str_mv |
info:eu-repo/semantics/openAccess |
| dc.rights.coar.spa.fl_str_mv |
http://purl.org/coar/access_right/c_abf2 |
| rights_invalid_str_mv |
https://creativecommons.org/licenses/by-nc-sa/2.5/co/ https://creativecommons.org/licenses/by-nc-sa/4.0/ Atribución-NoComercial-CompartirIgual 2.5 Colombia (CC BY-NC-SA 2.5 CO) http://purl.org/coar/access_right/c_abf2 |
| eu_rights_str_mv |
openAccess |
| dc.format.extent.spa.fl_str_mv |
9 |
| dc.format.mimetype.spa.fl_str_mv |
application/pdf |
| dc.publisher.spa.fl_str_mv |
Universidad de Antioquia, Facultad Nacional de Salud Pública |
| dc.publisher.place.spa.fl_str_mv |
Medellín, Colombia |
| institution |
Universidad de Antioquia |
| bitstream.url.fl_str_mv |
https://bibliotecadigital.udea.edu.co/bitstreams/7ee82294-4756-48b7-9f4b-edd263b2dcfe/download https://bibliotecadigital.udea.edu.co/bitstreams/809261dd-cd2a-48c3-81c0-2d81252a5c09/download https://bibliotecadigital.udea.edu.co/bitstreams/92828b65-1e8c-4bed-9ba8-66f2357969bc/download https://bibliotecadigital.udea.edu.co/bitstreams/f9e21f6c-b0dc-4f93-b38e-ae7c78c6500f/download https://bibliotecadigital.udea.edu.co/bitstreams/6308330b-cd70-402c-b647-0593e75f5565/download https://bibliotecadigital.udea.edu.co/bitstreams/df4354ab-560f-4052-b65f-88ee3ae3f1fc/download https://bibliotecadigital.udea.edu.co/bitstreams/e4c6cdfd-dcb5-4ebb-a7a6-677b15c546ab/download |
| bitstream.checksum.fl_str_mv |
dd66785e1eb7c4e161450104ec58be78 4afdbb8c545fd630ea7db775da747b2f d41d8cd98f00b204e9800998ecf8427e d41d8cd98f00b204e9800998ecf8427e 8a4605be74aa9ea9d79846c1fba20a33 0c1f07b18dc5c99a6510626f1c029ea8 d2ff216909732f9cf7744d194713469b |
| bitstream.checksumAlgorithm.fl_str_mv |
MD5 MD5 MD5 MD5 MD5 MD5 MD5 |
| repository.name.fl_str_mv |
Repositorio Institucional de la Universidad de Antioquia |
| repository.mail.fl_str_mv |
aplicacionbibliotecadigitalbiblioteca@udea.edu.co |
| _version_ |
1851052391202291712 |
| spelling |
Bastidas Acevedo, MiriamAriza Marriaga, Gustavo AlfredoZuliani Arango, Liliana AdelaSalud y Sociedad2016-10-27T15:12:55Z2016-10-27T15:12:55Z2013Bastidas M, Ariza G, Zuliani L. Reconocimiento del niño con síndrome de Down como un sujeto de crianza. Rev. Fac. Nac. Salud Pública 2013; 31(1): 102-109.0120-386Xhttp://hdl.handle.net/10495/50862256-3334ABSTRACT: o describe how the children with Down`s syndrome are recognized by mothers as subjects of parenting and accompaniment. Methodology: an ethnographic study whose participants were 20 mothers of children with Down’s syndrome. Data were collected using semi-structured interviews and field observations. Similarly, this study included a categorical analysis and a literature review. Results: given the cultural and social conceptions regarding this condition, mothers experience sadness and anxiety upon giving birth to a child with Down’s syndrome. Despite this, and thanks to coexistence and to the mother-child bond, the child is later perceived as a subject of parenting who is equal to another person without the syndrome. Discussion: children become social subjects when they achieve their goals in growth and development, and mothers can perceive this. Conclusion: by living with their sons, the mothers participating in this study discovered that their sons emerge as social persons with Down’s syndrome. The mothers also discovered that these individuals have their own potential and that it is possible to accompany them through parenting and therefore to realize themselves as mothers.RESUMEN: Describir el reconocimiento del niño con síndrome de Down como sujeto de crianza y de acompañamiento por parte de la madre. Metodología: investigación etnográfica con participación de 20 madres de niños con síndrome de Down, mediante entrevistas semiestructuradas y observaciones de campo, con análisis categorial y revisión documental. Resultados: las madres experimentan tristeza y ansiedad frente al encuentro de un niño con síndrome de Down, dadas las concepciones culturales y sociales, pero en la convivencia y en el vínculo madre-hijo surge un sujeto posible de crianza igual a otro sin síndrome. Discusión: el niño se transforma en sujeto social para su madre cuando logra metas en su crecimiento y desarrollo y así ella lo percibe. Conclusión: las madres de este estudio descubren en la convivencia con su hijo que emerge un sujeto social con la condición de síndrome de Down, con potencialidades de acompañarlo en su crianza y, por tanto, realizarse como madre.COL00274569application/pdfspaUniversidad de Antioquia, Facultad Nacional de Salud PúblicaMedellín, Colombiahttps://creativecommons.org/licenses/by-nc-sa/2.5/co/https://creativecommons.org/licenses/by-nc-sa/4.0/Atribución-NoComercial-CompartirIgual 2.5 Colombia (CC BY-NC-SA 2.5 CO)info:eu-repo/semantics/openAccesshttp://purl.org/coar/access_right/c_abf2Sindrome de DownCrianza de niñosDiscapacidadReconocimiento del niño con síndrome de Down como un sujeto de crianzaRecognizing a child with Down’s syndrome as a subject of parentingArtículo de investigaciónhttp://purl.org/coar/resource_type/c_2df8fbb1https://purl.org/redcol/resource_type/ARThttp://purl.org/coar/version/c_970fb48d4fbd8a85info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionRev. Fac. Nac. Salud Pública217121131Revista Facultad Nacional de Salud PúblicaPublicationORIGINALBastidasMiriam_2013_ReconocimientoNiñoSindrome.pdfBastidasMiriam_2013_ReconocimientoNiñoSindrome.pdfArtículo de investigaciónapplication/pdf275927https://bibliotecadigital.udea.edu.co/bitstreams/7ee82294-4756-48b7-9f4b-edd263b2dcfe/downloaddd66785e1eb7c4e161450104ec58be78MD51trueAnonymousREADCC-LICENSElicense_urllicense_urltext/plain; charset=utf-849https://bibliotecadigital.udea.edu.co/bitstreams/809261dd-cd2a-48c3-81c0-2d81252a5c09/download4afdbb8c545fd630ea7db775da747b2fMD52falseAnonymousREADlicense_textlicense_texttext/html; charset=utf-80https://bibliotecadigital.udea.edu.co/bitstreams/92828b65-1e8c-4bed-9ba8-66f2357969bc/downloadd41d8cd98f00b204e9800998ecf8427eMD53falseAnonymousREADlicense_rdflicense_rdfapplication/rdf+xml; charset=utf-80https://bibliotecadigital.udea.edu.co/bitstreams/f9e21f6c-b0dc-4f93-b38e-ae7c78c6500f/downloadd41d8cd98f00b204e9800998ecf8427eMD54falseAnonymousREADLICENSElicense.txtlicense.txttext/plain; charset=utf-81748https://bibliotecadigital.udea.edu.co/bitstreams/6308330b-cd70-402c-b647-0593e75f5565/download8a4605be74aa9ea9d79846c1fba20a33MD55falseAnonymousREADTEXTBastidasMiriam_2013_ReconocimientoNiñoSindrome.pdf.txtBastidasMiriam_2013_ReconocimientoNiñoSindrome.pdf.txtExtracted texttext/plain39919https://bibliotecadigital.udea.edu.co/bitstreams/df4354ab-560f-4052-b65f-88ee3ae3f1fc/download0c1f07b18dc5c99a6510626f1c029ea8MD56falseAnonymousREADTHUMBNAILBastidasMiriam_2013_ReconocimientoNiñoSindrome.pdf.jpgBastidasMiriam_2013_ReconocimientoNiñoSindrome.pdf.jpgGenerated Thumbnailimage/jpeg12578https://bibliotecadigital.udea.edu.co/bitstreams/e4c6cdfd-dcb5-4ebb-a7a6-677b15c546ab/downloadd2ff216909732f9cf7744d194713469bMD57falseAnonymousREAD10495/5086oai:bibliotecadigital.udea.edu.co:10495/50862025-03-26 21:34:16.894https://creativecommons.org/licenses/by-nc-sa/2.5/co/open.accesshttps://bibliotecadigital.udea.edu.coRepositorio Institucional de la Universidad de Antioquiaaplicacionbibliotecadigitalbiblioteca@udea.edu.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 |
