Escala de convivencia con un proceso crónico: estudio de validación y factores asociados

30 páginas

Autores:
Fonseca González, Luisa Fernanda
Páez Baquero, Karen Dayana
Tipo de recurso:
Trabajo de grado de pregrado
Fecha de publicación:
2018
Institución:
Universidad de la Sabana
Repositorio:
Repositorio Universidad de la Sabana
Idioma:
spa
OAI Identifier:
oai:intellectum.unisabana.edu.co:10818/34597
Acceso en línea:
https://hdl.handle.net/10818/34597
Palabra clave:
Enfermos crónicos -- Atención
Convivencia social
Enfermería
Rights
License
Attribution-NonCommercial-NoDerivatives 4.0 International
id REPOUSABA2_7c434897575496f6af3c5e13402e1178
oai_identifier_str oai:intellectum.unisabana.edu.co:10818/34597
network_acronym_str REPOUSABA2
network_name_str Repositorio Universidad de la Sabana
repository_id_str
dc.title.es_CO.fl_str_mv Escala de convivencia con un proceso crónico: estudio de validación y factores asociados
title Escala de convivencia con un proceso crónico: estudio de validación y factores asociados
spellingShingle Escala de convivencia con un proceso crónico: estudio de validación y factores asociados
Enfermos crónicos -- Atención
Convivencia social
Enfermería
title_short Escala de convivencia con un proceso crónico: estudio de validación y factores asociados
title_full Escala de convivencia con un proceso crónico: estudio de validación y factores asociados
title_fullStr Escala de convivencia con un proceso crónico: estudio de validación y factores asociados
title_full_unstemmed Escala de convivencia con un proceso crónico: estudio de validación y factores asociados
title_sort Escala de convivencia con un proceso crónico: estudio de validación y factores asociados
dc.creator.fl_str_mv Fonseca González, Luisa Fernanda
Páez Baquero, Karen Dayana
dc.contributor.advisor.none.fl_str_mv Fuentes Ramírez, Alejandra
Carvajal Carrascal, Gloria
dc.contributor.author.none.fl_str_mv Fonseca González, Luisa Fernanda
Páez Baquero, Karen Dayana
dc.subject.es_CO.fl_str_mv Enfermos crónicos -- Atención
Convivencia social
Enfermería
topic Enfermos crónicos -- Atención
Convivencia social
Enfermería
description 30 páginas
publishDate 2018
dc.date.issued.none.fl_str_mv 2018-11-02
dc.date.accessioned.none.fl_str_mv 2019-01-17T15:41:27Z
dc.date.available.none.fl_str_mv 2019-01-17T15:41:27Z
dc.type.es_CO.fl_str_mv Tesis/Trabajo de grado - Pregrado
dc.type.coar.none.fl_str_mv http://purl.org/coar/resource_type/c_7a1f
dc.type.coarversion.none.fl_str_mv http://purl.org/coar/version/c_970fb48d4fbd8a85
dc.type.content.es_CO.fl_str_mv Texto
dc.type.driver.none.fl_str_mv info:eu-repo/semantics/bachelorThesis
dc.type.redcol.none.fl_str_mv http://purl.org/redcol/resource_type/TP
format http://purl.org/coar/resource_type/c_7a1f
dc.identifier.citation.none.fl_str_mv Aaronson, N., Alonson, J., Burnam, A., Lohr, K.N., Patrick, D.L., Perrin, E., &Stein, R.E. (2002). Assessing health status and quality-of-life instruments: attributes and review criteria. Quality of Life Research, 11(3), 193-205.
Ambrosio, L., Senosiain, J.M., Riverol, M., Anaut, S., Díaz de Cerio Ayesa, S., Ursua, M.E., ¿ Portillo, M.C. (2015a). Living with chronic illness in adults: a concept analysis.Journal of Clinical Nursing, 24 (17-18), 2357-2367
Ambrosio, L., Portillo, M.C., Rodríguez-Blázquez, C., Carvajal, A., y Martínez-Martín, P. (2015b). Estudio piloto sobre la Escala de Convivencia con un Proceso Crónico en pacientes con enfermedad de Parkinson. Revista de Neurología, 61(10): 447-453.
Ambrosio, L., Portillo, M.C., Rodriguez-Blazquez, C., Rodríguez-Violante, M., MartinezCastrillo, J.C., Campos Arillo, V., ¿ Martinez-Martin, P. (2016a). Living with Chronic Illness Scale: International Validation of a New Self-Report Measure in Parkinson's Disease. npj Parkinson's Disease, 2, 16022, 1-6.
Ambrosio, L., Portillo, M.C., Rodriguez-Blazquez, C., Martínez-Castrillo, J.C., RodriguezViolante, M., Serrano-Dueñas, M., ¿ Martinez-Martin, P. (2016b). Satisfaction with Life Scale (SLS-6): First validation study in Parkinson¿s disease population. Parkinsonism and Related Disorders, 25: 52-57.
Ayala, A., Rodríguez-Blázquez, C., Frades-Payo, B., Forjaz, M.J., Martínez-Martín, P., Fernández-Mayoralas, G., y Rojo-Pérez, F. (2012). Propiedades psicométricas del Cuestionario de Apoyo Social Funcional y de la Escala de Soledad en adultos mayores no institucionalizados en España. Gaceta Sanitaria, 26(4), 317-324.
Barnett, M. (2005). Chronic obstructive pulmonary disease: a phenomenological study of patients¿ experiences. Journal of Clinical Nursing, 14(7), 805-812.
Broadhead, W.E., Gehlbach, S.H., de Gruy, F.V., & Kaplan, B.H. (1988). The Duke-UNC Functional Social Support Questionnaire, Measurement of social support in family medicine patients. Medical Care, 26(7), 709-723.
Cicchetti, D.V. (1994). Guidelines, criteria, and rules of thumb for evaluating normed and standardized assessment instruments in Psychology. Psychological Assessment, 6(4), 284-290.
Cooney, A., Mee, L., Casey, D., Murpy, K., Kirwan, C., Burke, E., ¿ Murphy, J. (2013). Life with chronic obstructive pulmonary disease: striving for ¿controlled coexistence¿. Journal of Clinical Nursing, 22(7-8), 986-995.
Corbin, J., & Strauss, A. (1987). Accompaniments of chronic illness: changes in body, self, biography, and biographical time. Research in the sociology of Health Care, 9, 249-281
Corcoran, K.J., Jowsey, T., & Leeder, S.R. (2013). One size does not fit all: the different experiences of those with chronic heart failure, type 2 diabetes and chronic obstructive pulmonary disease. Australian Health Review, 37(1), 19-25
De Vet, H.C., Terwee, C.B., Ostelo, R.W., Beckerman, H., Knol, D.L., & Bouter, L.M. (2006). Minimal changes in health status questionnaires: distinction between minimally detectable change and minimally important change. Health and Quality of Life Outcomes, 4(54), 1-5.
Delmar, C., Boje, T., Dylmer, D., Forup, L., Jakobsen, C., Moller, M., ¿ Pedersen, B.D. (2006). Independence/dependence ¿ a contradictory relationship? Life with a chronic illness. Scandinavian Journal of Caring Sciences, 20(3), 261-268.
Derogatis, L.R. (1986). The psychosocial adjustment to illness scale (PAIS). Journal of Psychosomatic Research, 30(1), 77-91.
Eisen, M., Ware, J.E., Donald, C.A., & Brook, R.H. (1979). Measuring components of children¿s health status. Medical Care, 17(9), 902-921.
Encuesta Europea de Salud (2009). Instituto Nacional de Estadística. Disponible en: http://www.ine.es/jaxi/menu.do?type=pcaxis&path=%2Ft15/p420&file=inebase.
Fayers, P.M., & Machin, D. (2007). Quality of Life. The assessment, analysis and interpretation of patient-reported outcomes. Chichester: Wiley.
Fraser, D.D., Kee, C.C., & Minick, P. (2006). Living with chronic obstructive pulmonary disease: insiders¿ perspectives. Journal of Advanced Nursing, 55(5), 550-558
Gènova-Maleras, R., Álvarez-Martín, E., Morant-Ginestar, C., Fernández de Larrea-Baz, N., Catalá-López, F. (2012). Measuring the burden of disease and injury in Spain using disability-adjusted life years: an updated and policy-oriented overview. Public Health, 126, 1024-1031
Guy, W. (1976). ECDEU Assessment Manual for Psychopharmacology Rockville. Rockville, U.S: Department of Health, Education, and Welfare
Hobart, J., Lamping, D., Fitzpatrick, R., Riazi, A., & Thompson, A. (2001). The Multiple Sclerosis Impact Scale (MSIS-29). A new patient-based outcome measure. Brain, 124(Pt 5), 962-973
Hobart, J.C., Riazi, A., Lamping, D.L., Fitzpatrick, R., & Thompson, A.J. (2004). Improving the evaluation of therapeutic interventions in multiple sclerosis: development of a patient-based measure of outcome. Health Technology Assessment, 8(9), iii, 1-48.
Koch, T., Jenkin, P., & Kralik, D. (2004). Chronic illness self-management: locating the ¿self¿. Journal of Advanced Nursing, 48(5), 484-492.
Kralik, D. (2005). ¿Moving on¿: the transition to living well with chronic illness. Australian Journal of Holistic Nursing, 12(2), 13-22
Landis, J.R., & Koch, G.G. (1977). The measurement of observer agreement for categorical data. Biometrics, 33(1), 159-174.
Marinus, J., Visser, M., Martínez-Martín, P., Van Hilten, J.J., & Stiggelbout, A.M. (2003). A short psychosocial questionnaire for patients with Parkinson¿s disease: the SCOPAPS. Journal of Clinical Epidemiology, 56(1), 61-67.
Martínez-Martín, P., y Frades Payo, B. (2006). Desarrollo de un instrumento de valoración de calidad de vida relacionada con la salud. En P. Martínez-Martín (Ed.), Calidad de vida en neurología (pp. 33-48). Barcelona, España: Ars Medica.
Martínez-Martín, P., Rodríguez-Blázquez, C., Alvarez, M., Arakaki, T., Campos, V., Chaná, P., ¿ Merello, M. (2015). Parkinson¿s disease severity levels and MDS-Unified Parkinson¿s Disease Rating Scale. Parkinsonism and Related Disorders, 21(1), 50-54.
Mazaheri, M.,& Theuns, P. (2006). A study of How Satisfaction and Dissatisfaction with Life Overall Relate to Satisfaction and Dissatisfaction in Specific Life Domains. Patient Reported Outcomes Newsletter, 37, 24-27.
McHorney, C.A., & Tarlov, A.R. (1995). Individual-patient monitoring in clinical practice: are available health status surveys adequate?. Quality of Life Research, 4(4), 293-307
Meleis, A.I, Sawyer, L., Im, E., Schumacher, K., & Messias, D. (2000). Experiencing transitions: an emerging middle range theory. Advances in Nursing Science, 23(1), 12-28.
Ministerio de Sanidad, Servicios Sociales e Igualdad (2012). Estrategia para el abordaje de la Cronicidad en el Sistema Nacional de Salud. Madrid: Ministerio de Sanidad, Servicios Sociales e Igualada.
Organización Mundial de la Salud (OMS) (2015). Enfermedades crónicas. Disponible en: http://www.who.int/topics/chronic_diseases/es/.
Piedmont, R.L. (2014). Inter-item correlations. In A.C. Michalos (Ed.), Enciclopedia Quality of Life and Well-Being Research (pp. 3303-3304). Dordrecht: Springer Netherlands.
Portillo, M.C., Senosiain, J.M., Arantzamendi, M., Zaragoza, A., Navarta, M.V., Díaz de Cerio, S., ¿ Moreno, V. (2012). Proyecto ReNACE. Convivencia de pacientes y familiares con la enfermedad de Parkinson: resultados preliminares de la Fase I. Enfermería Neurológica, 36(1), 31-38
Smith, S.C., Lamping, D.L., Banerjee, S., Harwood, R., Foley, B., Smith, P., ¿. Knapp, M. (2005). Measurement of health-related quality of life for people with dementia: development of a new instrument (DEMQOL) and an evaluation of current methodology. Health Technology Assessment, 9(10), 1-93.
Sossai, K., Gray, M., & Tanner, B. (2011). Living with chronic obstructive pulmonary disease: experiences in northern regional Australia. International Journal of Therapy and Rehabilitation, 18(11), 631-642.
Stanton, A.L., Revenson, T.A., & Tennen, H. (2007). Health Psychology: psychological adjustment to chronic disease. Adjustment to Chronic Disease, 58, 565-592.
Telford, K., Kralik, D., & Koch, T. (2006). Acceptance and denial: implications for people adapting to chronic illness: literature review. Journal of Advanced Nursing, 55(4), 457-464.
Terwee, C.B., Bot, S.D.M., de Boer, R.M., van der Windt, D.A.W.M., Knol, D.L., Dekker, J., ¿ de Vet, H.C. (2007). Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology, 60(1), 34-42.
Norman, G.R., Sloan, J.A., & Wyrwich, K.W. (2003). Interpretation of changes in healthrelated quality of life: The remarkable universality of half a standard deviation. Medical Care, 41(5), 582-592.
van der Linden, F.A.H., Kragt, J.J., Klein, M., van der Ploeg, H.M., Polman, C.H., & Uitdehaag, B.M.J. (2005). Psychometric evaluation of the multiple sclerosis impact scale (MSIS-29) for proxy use. Journal of Neurology Neurosurgery & Psychiatry, 76(12), 1677-1681.
Viktrup, L., Hayes, R.P., Wang, P., & Shen, W. (2012). Construct validation of patient global impression of severity (PGI-S) and improvement (PGI-I) questionnaires in the treatment of men with lower urinary tract symptoms secondary to benign prostatic hyperplasia. BMC Urology, 21(30), 1-8.
The World Health Organization Quality of Life (WHOQOL)-BREF World Health Organization2004. Disponible en: http://www.who.int/substance_abuse/research_tools/en/english_whoqol.pdf
Yalcin, I., & Viktrup, L. (2007). Comparison of physician and patient assessments of incontinence severity and improvement. International Urogynecology Journal and Pelvic Floor Dysfunction, 18(11), 1291-1295.
Zaragoza, A., Senosiain, J.M., Riverol, M., Anaut, S., Díaz de Cerio, S., Ursua, M.E., ¿ Portillo, M.C. (2014). Elementos clave en el proceso de convivencia con la enfermedad de Parkinson de pacientes y familiares cuidadores. Anales del Sistema Sanitario de Navarra, 37(1), 69-80.
dc.identifier.uri.none.fl_str_mv https://hdl.handle.net/10818/34597
dc.identifier.local.none.fl_str_mv 270188
TE09952
identifier_str_mv Aaronson, N., Alonson, J., Burnam, A., Lohr, K.N., Patrick, D.L., Perrin, E., &Stein, R.E. (2002). Assessing health status and quality-of-life instruments: attributes and review criteria. Quality of Life Research, 11(3), 193-205.
Ambrosio, L., Senosiain, J.M., Riverol, M., Anaut, S., Díaz de Cerio Ayesa, S., Ursua, M.E., ¿ Portillo, M.C. (2015a). Living with chronic illness in adults: a concept analysis.Journal of Clinical Nursing, 24 (17-18), 2357-2367
Ambrosio, L., Portillo, M.C., Rodríguez-Blázquez, C., Carvajal, A., y Martínez-Martín, P. (2015b). Estudio piloto sobre la Escala de Convivencia con un Proceso Crónico en pacientes con enfermedad de Parkinson. Revista de Neurología, 61(10): 447-453.
Ambrosio, L., Portillo, M.C., Rodriguez-Blazquez, C., Rodríguez-Violante, M., MartinezCastrillo, J.C., Campos Arillo, V., ¿ Martinez-Martin, P. (2016a). Living with Chronic Illness Scale: International Validation of a New Self-Report Measure in Parkinson's Disease. npj Parkinson's Disease, 2, 16022, 1-6.
Ambrosio, L., Portillo, M.C., Rodriguez-Blazquez, C., Martínez-Castrillo, J.C., RodriguezViolante, M., Serrano-Dueñas, M., ¿ Martinez-Martin, P. (2016b). Satisfaction with Life Scale (SLS-6): First validation study in Parkinson¿s disease population. Parkinsonism and Related Disorders, 25: 52-57.
Ayala, A., Rodríguez-Blázquez, C., Frades-Payo, B., Forjaz, M.J., Martínez-Martín, P., Fernández-Mayoralas, G., y Rojo-Pérez, F. (2012). Propiedades psicométricas del Cuestionario de Apoyo Social Funcional y de la Escala de Soledad en adultos mayores no institucionalizados en España. Gaceta Sanitaria, 26(4), 317-324.
Barnett, M. (2005). Chronic obstructive pulmonary disease: a phenomenological study of patients¿ experiences. Journal of Clinical Nursing, 14(7), 805-812.
Broadhead, W.E., Gehlbach, S.H., de Gruy, F.V., & Kaplan, B.H. (1988). The Duke-UNC Functional Social Support Questionnaire, Measurement of social support in family medicine patients. Medical Care, 26(7), 709-723.
Cicchetti, D.V. (1994). Guidelines, criteria, and rules of thumb for evaluating normed and standardized assessment instruments in Psychology. Psychological Assessment, 6(4), 284-290.
Cooney, A., Mee, L., Casey, D., Murpy, K., Kirwan, C., Burke, E., ¿ Murphy, J. (2013). Life with chronic obstructive pulmonary disease: striving for ¿controlled coexistence¿. Journal of Clinical Nursing, 22(7-8), 986-995.
Corbin, J., & Strauss, A. (1987). Accompaniments of chronic illness: changes in body, self, biography, and biographical time. Research in the sociology of Health Care, 9, 249-281
Corcoran, K.J., Jowsey, T., & Leeder, S.R. (2013). One size does not fit all: the different experiences of those with chronic heart failure, type 2 diabetes and chronic obstructive pulmonary disease. Australian Health Review, 37(1), 19-25
De Vet, H.C., Terwee, C.B., Ostelo, R.W., Beckerman, H., Knol, D.L., & Bouter, L.M. (2006). Minimal changes in health status questionnaires: distinction between minimally detectable change and minimally important change. Health and Quality of Life Outcomes, 4(54), 1-5.
Delmar, C., Boje, T., Dylmer, D., Forup, L., Jakobsen, C., Moller, M., ¿ Pedersen, B.D. (2006). Independence/dependence ¿ a contradictory relationship? Life with a chronic illness. Scandinavian Journal of Caring Sciences, 20(3), 261-268.
Derogatis, L.R. (1986). The psychosocial adjustment to illness scale (PAIS). Journal of Psychosomatic Research, 30(1), 77-91.
Eisen, M., Ware, J.E., Donald, C.A., & Brook, R.H. (1979). Measuring components of children¿s health status. Medical Care, 17(9), 902-921.
Encuesta Europea de Salud (2009). Instituto Nacional de Estadística. Disponible en: http://www.ine.es/jaxi/menu.do?type=pcaxis&path=%2Ft15/p420&file=inebase.
Fayers, P.M., & Machin, D. (2007). Quality of Life. The assessment, analysis and interpretation of patient-reported outcomes. Chichester: Wiley.
Fraser, D.D., Kee, C.C., & Minick, P. (2006). Living with chronic obstructive pulmonary disease: insiders¿ perspectives. Journal of Advanced Nursing, 55(5), 550-558
Gènova-Maleras, R., Álvarez-Martín, E., Morant-Ginestar, C., Fernández de Larrea-Baz, N., Catalá-López, F. (2012). Measuring the burden of disease and injury in Spain using disability-adjusted life years: an updated and policy-oriented overview. Public Health, 126, 1024-1031
Guy, W. (1976). ECDEU Assessment Manual for Psychopharmacology Rockville. Rockville, U.S: Department of Health, Education, and Welfare
Hobart, J., Lamping, D., Fitzpatrick, R., Riazi, A., & Thompson, A. (2001). The Multiple Sclerosis Impact Scale (MSIS-29). A new patient-based outcome measure. Brain, 124(Pt 5), 962-973
Hobart, J.C., Riazi, A., Lamping, D.L., Fitzpatrick, R., & Thompson, A.J. (2004). Improving the evaluation of therapeutic interventions in multiple sclerosis: development of a patient-based measure of outcome. Health Technology Assessment, 8(9), iii, 1-48.
Koch, T., Jenkin, P., & Kralik, D. (2004). Chronic illness self-management: locating the ¿self¿. Journal of Advanced Nursing, 48(5), 484-492.
Kralik, D. (2005). ¿Moving on¿: the transition to living well with chronic illness. Australian Journal of Holistic Nursing, 12(2), 13-22
Landis, J.R., & Koch, G.G. (1977). The measurement of observer agreement for categorical data. Biometrics, 33(1), 159-174.
Marinus, J., Visser, M., Martínez-Martín, P., Van Hilten, J.J., & Stiggelbout, A.M. (2003). A short psychosocial questionnaire for patients with Parkinson¿s disease: the SCOPAPS. Journal of Clinical Epidemiology, 56(1), 61-67.
Martínez-Martín, P., y Frades Payo, B. (2006). Desarrollo de un instrumento de valoración de calidad de vida relacionada con la salud. En P. Martínez-Martín (Ed.), Calidad de vida en neurología (pp. 33-48). Barcelona, España: Ars Medica.
Martínez-Martín, P., Rodríguez-Blázquez, C., Alvarez, M., Arakaki, T., Campos, V., Chaná, P., ¿ Merello, M. (2015). Parkinson¿s disease severity levels and MDS-Unified Parkinson¿s Disease Rating Scale. Parkinsonism and Related Disorders, 21(1), 50-54.
Mazaheri, M.,& Theuns, P. (2006). A study of How Satisfaction and Dissatisfaction with Life Overall Relate to Satisfaction and Dissatisfaction in Specific Life Domains. Patient Reported Outcomes Newsletter, 37, 24-27.
McHorney, C.A., & Tarlov, A.R. (1995). Individual-patient monitoring in clinical practice: are available health status surveys adequate?. Quality of Life Research, 4(4), 293-307
Meleis, A.I, Sawyer, L., Im, E., Schumacher, K., & Messias, D. (2000). Experiencing transitions: an emerging middle range theory. Advances in Nursing Science, 23(1), 12-28.
Ministerio de Sanidad, Servicios Sociales e Igualdad (2012). Estrategia para el abordaje de la Cronicidad en el Sistema Nacional de Salud. Madrid: Ministerio de Sanidad, Servicios Sociales e Igualada.
Organización Mundial de la Salud (OMS) (2015). Enfermedades crónicas. Disponible en: http://www.who.int/topics/chronic_diseases/es/.
Piedmont, R.L. (2014). Inter-item correlations. In A.C. Michalos (Ed.), Enciclopedia Quality of Life and Well-Being Research (pp. 3303-3304). Dordrecht: Springer Netherlands.
Portillo, M.C., Senosiain, J.M., Arantzamendi, M., Zaragoza, A., Navarta, M.V., Díaz de Cerio, S., ¿ Moreno, V. (2012). Proyecto ReNACE. Convivencia de pacientes y familiares con la enfermedad de Parkinson: resultados preliminares de la Fase I. Enfermería Neurológica, 36(1), 31-38
Smith, S.C., Lamping, D.L., Banerjee, S., Harwood, R., Foley, B., Smith, P., ¿. Knapp, M. (2005). Measurement of health-related quality of life for people with dementia: development of a new instrument (DEMQOL) and an evaluation of current methodology. Health Technology Assessment, 9(10), 1-93.
Sossai, K., Gray, M., & Tanner, B. (2011). Living with chronic obstructive pulmonary disease: experiences in northern regional Australia. International Journal of Therapy and Rehabilitation, 18(11), 631-642.
Stanton, A.L., Revenson, T.A., & Tennen, H. (2007). Health Psychology: psychological adjustment to chronic disease. Adjustment to Chronic Disease, 58, 565-592.
Telford, K., Kralik, D., & Koch, T. (2006). Acceptance and denial: implications for people adapting to chronic illness: literature review. Journal of Advanced Nursing, 55(4), 457-464.
Terwee, C.B., Bot, S.D.M., de Boer, R.M., van der Windt, D.A.W.M., Knol, D.L., Dekker, J., ¿ de Vet, H.C. (2007). Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology, 60(1), 34-42.
Norman, G.R., Sloan, J.A., & Wyrwich, K.W. (2003). Interpretation of changes in healthrelated quality of life: The remarkable universality of half a standard deviation. Medical Care, 41(5), 582-592.
van der Linden, F.A.H., Kragt, J.J., Klein, M., van der Ploeg, H.M., Polman, C.H., & Uitdehaag, B.M.J. (2005). Psychometric evaluation of the multiple sclerosis impact scale (MSIS-29) for proxy use. Journal of Neurology Neurosurgery & Psychiatry, 76(12), 1677-1681.
Viktrup, L., Hayes, R.P., Wang, P., & Shen, W. (2012). Construct validation of patient global impression of severity (PGI-S) and improvement (PGI-I) questionnaires in the treatment of men with lower urinary tract symptoms secondary to benign prostatic hyperplasia. BMC Urology, 21(30), 1-8.
The World Health Organization Quality of Life (WHOQOL)-BREF World Health Organization2004. Disponible en: http://www.who.int/substance_abuse/research_tools/en/english_whoqol.pdf
Yalcin, I., & Viktrup, L. (2007). Comparison of physician and patient assessments of incontinence severity and improvement. International Urogynecology Journal and Pelvic Floor Dysfunction, 18(11), 1291-1295.
Zaragoza, A., Senosiain, J.M., Riverol, M., Anaut, S., Díaz de Cerio, S., Ursua, M.E., ¿ Portillo, M.C. (2014). Elementos clave en el proceso de convivencia con la enfermedad de Parkinson de pacientes y familiares cuidadores. Anales del Sistema Sanitario de Navarra, 37(1), 69-80.
270188
TE09952
url https://hdl.handle.net/10818/34597
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dc.publisher.es_CO.fl_str_mv Universidad de La Sabana
dc.publisher.program.none.fl_str_mv Enfermería
dc.publisher.department.none.fl_str_mv Facultad de Enfermería y Rehabilitación
dc.source.none.fl_str_mv Universidad de La Sabana
Intellectum Repositorio Universidad de La Sabana
institution Universidad de la Sabana
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spelling Fuentes Ramírez, AlejandraCarvajal Carrascal, GloriaFonseca González, Luisa FernandaPáez Baquero, Karen DayanaEnfermera2019-01-17T15:41:27Z2019-01-17T15:41:27Z2018-11-02Aaronson, N., Alonson, J., Burnam, A., Lohr, K.N., Patrick, D.L., Perrin, E., &Stein, R.E. (2002). Assessing health status and quality-of-life instruments: attributes and review criteria. Quality of Life Research, 11(3), 193-205.Ambrosio, L., Senosiain, J.M., Riverol, M., Anaut, S., Díaz de Cerio Ayesa, S., Ursua, M.E., ¿ Portillo, M.C. (2015a). Living with chronic illness in adults: a concept analysis.Journal of Clinical Nursing, 24 (17-18), 2357-2367Ambrosio, L., Portillo, M.C., Rodríguez-Blázquez, C., Carvajal, A., y Martínez-Martín, P. (2015b). Estudio piloto sobre la Escala de Convivencia con un Proceso Crónico en pacientes con enfermedad de Parkinson. Revista de Neurología, 61(10): 447-453.Ambrosio, L., Portillo, M.C., Rodriguez-Blazquez, C., Rodríguez-Violante, M., MartinezCastrillo, J.C., Campos Arillo, V., ¿ Martinez-Martin, P. (2016a). Living with Chronic Illness Scale: International Validation of a New Self-Report Measure in Parkinson's Disease. npj Parkinson's Disease, 2, 16022, 1-6.Ambrosio, L., Portillo, M.C., Rodriguez-Blazquez, C., Martínez-Castrillo, J.C., RodriguezViolante, M., Serrano-Dueñas, M., ¿ Martinez-Martin, P. (2016b). Satisfaction with Life Scale (SLS-6): First validation study in Parkinson¿s disease population. Parkinsonism and Related Disorders, 25: 52-57.Ayala, A., Rodríguez-Blázquez, C., Frades-Payo, B., Forjaz, M.J., Martínez-Martín, P., Fernández-Mayoralas, G., y Rojo-Pérez, F. (2012). Propiedades psicométricas del Cuestionario de Apoyo Social Funcional y de la Escala de Soledad en adultos mayores no institucionalizados en España. Gaceta Sanitaria, 26(4), 317-324.Barnett, M. (2005). Chronic obstructive pulmonary disease: a phenomenological study of patients¿ experiences. Journal of Clinical Nursing, 14(7), 805-812.Broadhead, W.E., Gehlbach, S.H., de Gruy, F.V., & Kaplan, B.H. (1988). The Duke-UNC Functional Social Support Questionnaire, Measurement of social support in family medicine patients. Medical Care, 26(7), 709-723.Cicchetti, D.V. (1994). Guidelines, criteria, and rules of thumb for evaluating normed and standardized assessment instruments in Psychology. Psychological Assessment, 6(4), 284-290.Cooney, A., Mee, L., Casey, D., Murpy, K., Kirwan, C., Burke, E., ¿ Murphy, J. (2013). Life with chronic obstructive pulmonary disease: striving for ¿controlled coexistence¿. Journal of Clinical Nursing, 22(7-8), 986-995.Corbin, J., & Strauss, A. (1987). Accompaniments of chronic illness: changes in body, self, biography, and biographical time. Research in the sociology of Health Care, 9, 249-281Corcoran, K.J., Jowsey, T., & Leeder, S.R. (2013). One size does not fit all: the different experiences of those with chronic heart failure, type 2 diabetes and chronic obstructive pulmonary disease. Australian Health Review, 37(1), 19-25De Vet, H.C., Terwee, C.B., Ostelo, R.W., Beckerman, H., Knol, D.L., & Bouter, L.M. (2006). Minimal changes in health status questionnaires: distinction between minimally detectable change and minimally important change. Health and Quality of Life Outcomes, 4(54), 1-5.Delmar, C., Boje, T., Dylmer, D., Forup, L., Jakobsen, C., Moller, M., ¿ Pedersen, B.D. (2006). Independence/dependence ¿ a contradictory relationship? Life with a chronic illness. Scandinavian Journal of Caring Sciences, 20(3), 261-268.Derogatis, L.R. (1986). The psychosocial adjustment to illness scale (PAIS). Journal of Psychosomatic Research, 30(1), 77-91.Eisen, M., Ware, J.E., Donald, C.A., & Brook, R.H. (1979). Measuring components of children¿s health status. Medical Care, 17(9), 902-921.Encuesta Europea de Salud (2009). 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Desarrollo de un instrumento de valoración de calidad de vida relacionada con la salud. En P. Martínez-Martín (Ed.), Calidad de vida en neurología (pp. 33-48). Barcelona, España: Ars Medica.Martínez-Martín, P., Rodríguez-Blázquez, C., Alvarez, M., Arakaki, T., Campos, V., Chaná, P., ¿ Merello, M. (2015). Parkinson¿s disease severity levels and MDS-Unified Parkinson¿s Disease Rating Scale. Parkinsonism and Related Disorders, 21(1), 50-54.Mazaheri, M.,& Theuns, P. (2006). A study of How Satisfaction and Dissatisfaction with Life Overall Relate to Satisfaction and Dissatisfaction in Specific Life Domains. Patient Reported Outcomes Newsletter, 37, 24-27.McHorney, C.A., & Tarlov, A.R. (1995). Individual-patient monitoring in clinical practice: are available health status surveys adequate?. Quality of Life Research, 4(4), 293-307Meleis, A.I, Sawyer, L., Im, E., Schumacher, K., & Messias, D. (2000). Experiencing transitions: an emerging middle range theory. Advances in Nursing Science, 23(1), 12-28.Ministerio de Sanidad, Servicios Sociales e Igualdad (2012). Estrategia para el abordaje de la Cronicidad en el Sistema Nacional de Salud. Madrid: Ministerio de Sanidad, Servicios Sociales e Igualada.Organización Mundial de la Salud (OMS) (2015). Enfermedades crónicas. Disponible en: http://www.who.int/topics/chronic_diseases/es/.Piedmont, R.L. (2014). Inter-item correlations. In A.C. Michalos (Ed.), Enciclopedia Quality of Life and Well-Being Research (pp. 3303-3304). Dordrecht: Springer Netherlands.Portillo, M.C., Senosiain, J.M., Arantzamendi, M., Zaragoza, A., Navarta, M.V., Díaz de Cerio, S., ¿ Moreno, V. (2012). Proyecto ReNACE. Convivencia de pacientes y familiares con la enfermedad de Parkinson: resultados preliminares de la Fase I. Enfermería Neurológica, 36(1), 31-38Smith, S.C., Lamping, D.L., Banerjee, S., Harwood, R., Foley, B., Smith, P., ¿. Knapp, M. (2005). Measurement of health-related quality of life for people with dementia: development of a new instrument (DEMQOL) and an evaluation of current methodology. Health Technology Assessment, 9(10), 1-93.Sossai, K., Gray, M., & Tanner, B. (2011). Living with chronic obstructive pulmonary disease: experiences in northern regional Australia. International Journal of Therapy and Rehabilitation, 18(11), 631-642.Stanton, A.L., Revenson, T.A., & Tennen, H. (2007). Health Psychology: psychological adjustment to chronic disease. Adjustment to Chronic Disease, 58, 565-592.Telford, K., Kralik, D., & Koch, T. (2006). Acceptance and denial: implications for people adapting to chronic illness: literature review. Journal of Advanced Nursing, 55(4), 457-464.Terwee, C.B., Bot, S.D.M., de Boer, R.M., van der Windt, D.A.W.M., Knol, D.L., Dekker, J., ¿ de Vet, H.C. (2007). Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology, 60(1), 34-42.Norman, G.R., Sloan, J.A., & Wyrwich, K.W. (2003). Interpretation of changes in healthrelated quality of life: The remarkable universality of half a standard deviation. Medical Care, 41(5), 582-592.van der Linden, F.A.H., Kragt, J.J., Klein, M., van der Ploeg, H.M., Polman, C.H., & Uitdehaag, B.M.J. (2005). Psychometric evaluation of the multiple sclerosis impact scale (MSIS-29) for proxy use. Journal of Neurology Neurosurgery & Psychiatry, 76(12), 1677-1681.Viktrup, L., Hayes, R.P., Wang, P., & Shen, W. (2012). Construct validation of patient global impression of severity (PGI-S) and improvement (PGI-I) questionnaires in the treatment of men with lower urinary tract symptoms secondary to benign prostatic hyperplasia. BMC Urology, 21(30), 1-8.The World Health Organization Quality of Life (WHOQOL)-BREF World Health Organization2004. Disponible en: http://www.who.int/substance_abuse/research_tools/en/english_whoqol.pdfYalcin, I., & Viktrup, L. (2007). Comparison of physician and patient assessments of incontinence severity and improvement. International Urogynecology Journal and Pelvic Floor Dysfunction, 18(11), 1291-1295.Zaragoza, A., Senosiain, J.M., Riverol, M., Anaut, S., Díaz de Cerio, S., Ursua, M.E., ¿ Portillo, M.C. (2014). Elementos clave en el proceso de convivencia con la enfermedad de Parkinson de pacientes y familiares cuidadores. Anales del Sistema Sanitario de Navarra, 37(1), 69-80.https://hdl.handle.net/10818/34597270188TE0995230 páginasDebido a los cambios en la estructura poblaciones que se han producido a lo largo del siglo XX en Europa y España, los procesos crónicos han sufrido un importante crecimiento en la sociedad actual. En conformidad con las directrices establecida por el Ministerio de Sanidad, Servicios sociales e Igualdad, conocer en profundidad cómo la persona convive con un proceso crónico es necesario para proporcionar un cuidado holístico y de calidad, de acuerdo a las necesidades específicas de cada paciente. Para ello, se aboga por el uso de instrumentos clínicos que permitan conocer y evaluar el proceso de convivencia desde la perspectiva del paciente. En la actualidad, la Escala de Convivencia con un Proceso Crónico (EC-PC) es la única medida que evalúa cómo el paciente convive con un proceso crónico de manera holística. La EC-PC es una innovadora medida clínica que evalúa el grado de convivencia con un proceso crónico desde la perspectiva del paciente. El objetivo de este estudio, es validar la EC-PC en una población de pacientes con diversas enfermedades crónicas como la Diabetes Mellitus, Insuficiencia Cardiaca, EPOC e Hipertensión Arterial. Para ello, se llevará a cabo un estudio descriptivo, observacional, internacional y transversal. 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